Hi, We are Bill and Connie. We are proud parents of three beautiful children: Sara - 16, Nicholas - 10, and Billy - 8.Our third child, Billy was born on May 11, 2000 with VACTERLS association and features of Caudal Regression/Sacral Agenesis, a rare combination of congenital birth defects. His complications include: smaller left pelvis, hemisacrum (missing left half), hemivertebrae and L5 anomalies, mild long segment scoliosis, extra left rib, low imperforate anus, single right kidney, urogenital anomalies with hypospadius, smaller underdeveloped left leg with equinovarus club foot, tethered spinal cord, PDA (closed on its own) GI reflux, delayed gastric emptying/gastroparesis and mild swallowing dysphagia. So far, he has had surgeries to correct the imperforate anus, tethered cord, urogenital anomalies, hypospadius, and club foot along with ear tubes and a tonsillectomy/adenoidectomy. He also had a spinal fusion done to stabilize his spine and pelvic junction.It was overwhelming at first, but we have adjusted well, thanks in part to a wonderful family. Billy is a happy, healthy little guy with a lot of energy and spunk. We were blessed in that all his problems are maintenance issues and do not affect his overall health. Despite many surgeries, and countless other assorted procedures and doctor visits, he is the sweetest and happiest little camper. Except, of course, when big brother Nicholas is torturing him, which is pretty often.
Since Billy's birth, we have been through a lot, and have learned to appreciate the things that are truly important in life - namely family and health. We are continually amazed at his strengh of spirit, and the way he overcomes any obstacle put in his path. We also feel truly blessed to have such a wonderful family, which has supported us so much since Billy's birth.If anyone wishes to share their experiences, or needs advice on similar problems or just some moral support, feel free to email me at Conni60640@aol.com.
Come visit my website at http://members.tripod.com/conni60640-ivil/ to learn about Billy's issues and see what has been done to date, along with information on the conditions he was born with, helpful links , and pictures of the latest happenings with him and the rest of the family.
